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Chance had his latest round of appointments yesterday. Dr. Riski, the cranio-facial doctor, talked to us about the myotonic dystrophy issue, and was pretty confident that wasn't it. He looked at his grip release speed, how well his eyes followed a pointing finger, and how well he could wrinkle his forehead. Apparently, those types of motions are good early indicators; Chance passed. He also got Chance to try to bend a tongue depressor with his tongue, and was a little perturbed that he couldn't do that.

We met with the nutritionist, who took some dietary information, and weighed and measured him. He's in the 75th percentile in height and the 40th in weight. His body-mass index is in about the 45th percentile, which was a relief, since we've been worried that he's been losing too much weight. She did suggest that we give him more protien. I felt like suggesting she was welcome to try herself.

We had a good initial visit with Jessica, the occupational therapist. She had all kinds of gadgets and toys, mostly to test different types of hand and finger stregth and dexterity. She said his strength was low. So, we're going to get a full occupational and physical therapy evaluation next month. Ginger and I filled out the questionaire this morning, but there certainly wasn't anything that jumped out at us from how we answered the questions.

So, no results, just more tests to come. Dr. Riski says that we don't have all the pieces yet, but it's still a little discouraging that we haven't been able to make things any better.

Chance did go to school last Friday, but was very tentative and withdrawn, and asked to go home pretty soon. Apparently the kids aren't teasing him anymore and play with him during recess, but no one wants to sit next to him in class. We will have a teacher come out starting in January for 3-6 hours a week, so that should help some, but I still just wish there was something we could do so that he could go back to school.

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